I received this comment on my most recent post called, "For the Best." I really appreciate the love and support for our family from those who commented afterwards, but really, it's okay. Dave and I both feel the very same way we felt upon receiving a few similar comments a few months ago. It's just another reminder of why we choose to share the feeding aspect, along with the truth of how Aviana died.
Although I enjoy reading your post, I just can't understand how anyone can justify allowing a young child to starve. I know it was tough and heartbreaking for all of you, but to think that a brain injured child can make a life changing decision to stop eating is something I just don't agree with. I'm wondering if this was agreed to by doctors as the way you write about it to me is something close to assisted suicide. Not sure how anyone could consciously watch their child starve over the course of weeks. It must be very difficult to live with the decision you made on a daily basis.
Hi Anonymous ~
I previously had a few people comment that felt similar to you. I responded to their comments with a few posts, not in hopes of changing their thought process, just in explaining further. I understand we have completely different views on the matter, and that's okay. I have no reason to justify ours as a family, as we feel completely at peace with the decisions we made for Aviana. The sole reason we choose to share our journey in its entirety is for one main reason. We share for any family who's found themselves in a situation like ours, and with a child who is refusing like Aviana.
I understand and actually do respect your opinion, but it's definitely not, nor ever will be mine - for my family and most certainly not my sweet, loving daughter.
Of all the things I've accomplished in my life, or ever will in the future, I'll die knowing I did absolutely right by, and for, Aviana. It's the one thing I'm most proud of. I say it to Dave often, "I'm so proud of how we handled everything from the accident forward, but especially in the end." And guess what? I'm not one to pat myself on the back. But we did it! We worked like never before, were ridiculously proactive, saw everything for what it really was, tried to have a good attitude throughout, did what was needed, and in the end - it was as beautiful an experience as could be. Best of all, Aviana was pain free and peaceful. Furthermore, we learned everything from her and carry every bit, in every step we take. Who can ask for anything more? If life has to be this way... and I've learned it sometimes does, who can ask for more?
I am most grateful everyday and every moment for our Palliative and Hospice staff - for without people like them - people like Aviana would continue to needlessly and endlessly suffer. And in turn, so would we...my whole family.
If you so choose...