I didn't get any sleep the night before. We were up at 5 am and were greeted at the hospital by my Mom and Gary at 6 am. We admitted Aviana, and with that came the signing of the papers no mother wants or should have to for the 11th time. Ugh. What came next was yet another of what no parent, or grandparent, should have to experience and that is the watching and wheeling back of your little love.
Aviana did great. She always does. The doctor went in and the plate and screws were about to come through, as suspected. He removed all and had a new, longer set to install in its place. He ran into a problem though. The bone, which showed thick on the CT Scan, was anything but. As he looked around, he quickly realized, the scan was not accurately reflecting what was happening inside. Her bone was indeed receding. His description hurt our hearts in the worst way. He said, "her bone is like shale. It's in thin layers and is falling into pieces."
According to Wikipedia -
Shale is a fine-grained, clastic sedimentary rock composed of mud that is a mix of flakes of clay minerals and tiny fragments (silt-sized particles) of other minerals, especially quartz and calcite. Shale is characterized by breaks along thin laminae or parallel layering or bedding less than one centimeter in thickness, called fissility. Shale typically exhibits varying degrees of fissility breaking into thin layers, often splintery and usually parallel to the otherwise indistinguishable bedding plane because of parallel orientation of clay mineral flakes.
Yep...that's the state of our baby's skull. So needless to say, her doctor was unable to anchor any sort of screws or new plates into the area. If he did, we would find ourselves in the very same predicament we were just in.
So what's this mean for our future? Well at this point, it is not absolutely urgent as she is not able to run, jump, play, walk, or move. If she were able to do these things, we would need to act now. Because she is unable, we have some time.
In time, there will be other hardware coming through her head. So for me ~ I want her to have to endure as few surgeries as possible. There will be a balancing act as to when the hardware begins to present itself, and what the state of the sunken in area looks and feels like. I will be closely monitoring all of this, and we will be making these determinations as we go.
Anyways, back to yesterday. Aviana was under anesthesia for her head and liver biopsy, but sadly, she was awake for five needle sticks. There are no words to describe the way we felt having to see her experience that kind of pain on top of all she had just been through. At the time of the initial accident, we were in shock and going through the motions. We are not in shock now, these moments are truly just plain difficult!
I made sure we were the first on the schedule, so we would be coming home yesterday. We spent a total of 8 hours at the hospital. Once we arrived home, the routine for Aviana was nap, throw up, cry, repeat. It was terribly sad to see her go through this. In those moments, it was hard for me not to curse the brain injury bastard. I was finding it extremely difficult to not picture what she would've been doing had this God forsaken accident not occurred. She would probably have been running around, smiling and playing - not napping, throwing up, and crying with her head cut opened and her liver punctured through.
Anyway, she is doing much better today. This girl is my hero. I can't even come up with a word to accurately describe the way I feel about her. All words I could use - inspiring, amazing, strong, tough, superstar, etc. all pale in comparison to what I feel when I look into those big brown eyes of hers.
You are indescribable.
You always have been, and always will be!
Look who joined us. Lamby has been with Aviana through all of her surgeries except the first two emergency ones. These are pictures from her last trip.
She wasn't happy to have been woken up at 5 am.
We shared in her pain!
The all too familiar Kaiser gown...
You're going to cut my what opened?
My beautiful Mom...and Gary too ; ) with Avi.
This picture reminded me of another from not too long ago...
This one of Dave and Aviana reminded me of another from a while ago, it was the day they put her bone flaps back on. It's the way she's looking at him. You can find it here.
She loves her Papa.
Really Mom...with this adult sized cap on my head? Really?
She had her Nana and Papa's love in abundance before they wheeled her back.
Oh Lamby, you sure know how to save a girl. Not just one, but two. You bring comfort to me, knowing you are with her.
I love you sweet baby.
And then, we waited...
Our sweet ~ after she came out of surgery.